Aparito presented a poster alongside Kyowa Kirin Co. Ltd. and OPEN VIE at the ISPOR Europe 2020 event.
A European, prospective, multi-centre, mixed-methods observational study is in development to investigate treatment transition and disease experience in adolescents with X-Linked Hypophosphatemia (XLH), a rare, genetic life-long phosphate-wasting disorder.
To ensure robustness, feasibility and patient-centricity of study design, a UK patient-public involvement (PPI) project was undertaken.