All journal news
Development and usability testing of an ePRO solution for patients with inflammatory diseases in an ATMP basket trial
Published: 11/10/2023
SARAhome video assessment deployed in pan-European ataxia observational study
Published: 22/08/2023
Accelerometer-derived sleep measures in idiopathic dystonia
Published: 15/08/2023
A global neuronopathic Gaucher disease registry (GaRDIAN): a patient-led initiative
Published: 28/07/2023
Considerations for patient and public involvement and engagement in health research
Published: 21/07/2023
Digitally enabled decentralised research: opportunities to improve the efficiency of clinical trials and observational studies
Published: 21/02/2023
Patient-led development of digital endpoints and the use of computer vision analysis in assessment of motor function in rare diseases
Published: 13/09/2022
Symptoms and risk factors for long COVID in non-hospitalized adults
Published: 27/07/2022
Development of SARAhome, a New Video-Based Tool for the Assessment of Ataxia at Home
Published: 10/06/2022
Ethical Considerations for the Inclusion of Patient-Reported Outcomes in Clinical Research
Published: 18/05/2022
Patient reported outcome (PRO) assessment must be inclusive and equitable
Published: 10/05/2022
The Symptom Burden Questionnaire™ for Long COVID
Published: 27/04/2022
Impact of assessment frequency of patient-reported outcomes: an observational study using an eHealth platform in cancer patients
Published: 16/02/2022
A qualitative study exploring caregivers’ experiences, perspectives, and expectations for precision medicine in epilepsy in South Africa
Published: 17/01/2022
Time to See the Difference: Video Capture for Patient-Centered Clinical Trials
Published: 10/01/2022