All publications
Video-Based Assessments to Digitise COA: validating vTUG for Parkinson’s disease
Published: 10/11/2023
Development and usability testing of an ePRO solution for patients with inflammatory diseases in an ATMP basket trial
Published: 11/10/2023
Video-Based Assessments to Digitise COA: the story of SARAhome
Published: 11/09/2023
SARAhome video assessment deployed in pan-European ataxia observational study
Published: 22/08/2023
Accelerometer-derived sleep measures in idiopathic dystonia
Published: 15/08/2023
Provisioned Devices vs BYOD in Clinical Trials
Published: 08/08/2023
A global neuronopathic Gaucher disease registry (GaRDIAN): a patient-led initiative
Published: 28/07/2023
Considerations for patient and public involvement and engagement in health research
Published: 21/07/2023
Co-creation of new digital outcome measures in amyotrophic lateral sclerosis (ALS)
Published: 30/06/2023
Digitally enabled decentralised research: opportunities to improve the efficiency of clinical trials and observational studies
Published: 21/02/2023
Use of remote monitoring and integrated platform for the evaluation of sleep quality in adult-onset idiopathic cervical dystonia
Published: 07/11/2022
Sleep in adult-onset idiopathic focal cervical dystonia (AOIFCD): an evaluation using self-reported and accelerometer derived measures
Published: 04/11/2022
Patient-led development of digital endpoints and the use of computer vision analysis in assessment of motor function in rare diseases
Published: 13/09/2022
Symptoms and risk factors for long COVID in non-hospitalized adults
Published: 27/07/2022
Harnessing the power of patients with Gaucher Disease Type 2 and Type 3
Published: 20/07/2022