All publications

Journal

Recommendations to address respondent burden associated with PROs

Journal

A patient-centred and multi-stakeholder co-designed observational prospective study protocol: Example of the adolescent experience of treatment for X-linked hypophosphataemia (XLH)

White paper

Enhancing Global Studies with Commercial-Grade Wearable Data

White paper

Pixels or paper? Exploring Patient-Reported Outcomes (PROs) in Clinical Trials

White paper

Video-Based Assessments to Digitise COA: validating vTUG for Parkinson’s disease

Journal

Development and usability testing of an ePRO solution for patients with inflammatory diseases in an ATMP basket trial

White paper

Video-Based Assessments to Digitise COA: the story of SARAhome

Journal

SARAhome video assessment deployed in pan-European ataxia observational study

Journal

Accelerometer-derived sleep measures in idiopathic dystonia

White paper

Provisioned Devices vs BYOD in Clinical Trials

Journal

A global neuronopathic Gaucher disease registry (GaRDIAN): a patient-led initiative

Journal

Considerations for patient and public involvement and engagement in health research

Poster

Co-creation of new digital outcome measures in amyotrophic lateral sclerosis (ALS)

Journal

Digitally enabled decentralised research: opportunities to improve the efficiency of clinical trials and observational studies

White paper

Use of remote monitoring and integrated platform for the evaluation of sleep quality in adult-onset idiopathic cervical dystonia