All publications

Journal

Symptoms and risk factors for long COVID in non-hospitalized adults

Poster

Harnessing the power of patients with Gaucher Disease Type 2 and Type 3

Poster

TASTY: Feasibility of facial expression analysis as an objective palatability assessment of paediatric medicine

Journal

Ethical Considerations for the Inclusion of Patient-Reported Outcomes in Clinical Research

Journal

Patient reported outcome (PRO) assessment must be inclusive and equitable

Journal

The Symptom Burden Questionnaire™ for Long COVID

Presentations

On-Demand Webinar: Video Capture for Patient-Centered Clinical Trials

Journal

Impact of assessment frequency of patient-reported outcomes: an observational study using an eHealth platform in cancer patients

Journal

A qualitative study exploring caregivers’ experiences, perspectives, and expectations for precision medicine in epilepsy in South Africa

Journal

Time to See the Difference: Video Capture for Patient-Centered Clinical Trials

Journal

Demonstrating the feasibility of digital health to support pediatric patients in South Africa

Presentations

Engaging young patients and parents in medical devices

Poster

Patient Reported Outcomes Research in Trauma: testing the usability of an ePRO system with the PRiORiTy study

Presentations

“Training & education, participation with purpose, and institutions that are designed to work for children”

Presentations

Webinar: Putting Paediatrics’ Needs First in Clinical Research