All publications
Recommendations to address respondent burden associated with PROs
Published: 01/03/2024
A patient-centred and multi-stakeholder co-designed observational prospective study protocol: Example of the adolescent experience of treatment for X-linked hypophosphataemia (XLH)
Published: 22/01/2024
Enhancing Global Studies with Commercial-Grade Wearable Data
Published: 15/01/2024
Pixels or paper? Exploring Patient-Reported Outcomes (PROs) in Clinical Trials
Published: 04/12/2023
Video-Based Assessments to Digitise COA: validating vTUG for Parkinson’s disease
Published: 10/11/2023
Development and usability testing of an ePRO solution for patients with inflammatory diseases in an ATMP basket trial
Published: 11/10/2023
Video-Based Assessments to Digitise COA: the story of SARAhome
Published: 11/09/2023
SARAhome video assessment deployed in pan-European ataxia observational study
Published: 22/08/2023
Accelerometer-derived sleep measures in idiopathic dystonia
Published: 15/08/2023
Provisioned Devices vs BYOD in Clinical Trials
Published: 08/08/2023
A global neuronopathic Gaucher disease registry (GaRDIAN): a patient-led initiative
Published: 28/07/2023
Considerations for patient and public involvement and engagement in health research
Published: 21/07/2023
Co-creation of new digital outcome measures in amyotrophic lateral sclerosis (ALS)
Published: 30/06/2023
Digitally enabled decentralised research: opportunities to improve the efficiency of clinical trials and observational studies
Published: 21/02/2023
Use of remote monitoring and integrated platform for the evaluation of sleep quality in adult-onset idiopathic cervical dystonia
Published: 07/11/2022