All publications

White paper

Use of remote monitoring and integrated platform for the evaluation of sleep quality in adult-onset idiopathic cervical dystonia

Poster

Sleep in adult-onset idiopathic focal cervical dystonia (AOIFCD): an evaluation using self-reported and accelerometer derived measures

Journal

Symptoms and risk factors for long COVID in non-hospitalized adults

Poster

Harnessing the power of patients with Gaucher Disease Type 2 and Type 3

Journal

Development of SARAhome, a New Video-Based Tool for the Assessment of Ataxia at Home

Poster

TASTY: Feasibility of facial expression analysis as an objective palatability assessment of paediatric medicine

Journal

Ethical Considerations for the Inclusion of Patient-Reported Outcomes in Clinical Research

Journal

Patient reported outcome (PRO) assessment must be inclusive and equitable

Journal

The Symptom Burden Questionnaire™ for Long COVID

Presentations

On-Demand Webinar: Video Capture for Patient-Centered Clinical Trials

Journal

Impact of assessment frequency of patient-reported outcomes: an observational study using an eHealth platform in cancer patients

Journal

A qualitative study exploring caregivers’ experiences, perspectives, and expectations for precision medicine in epilepsy in South Africa

Journal

Time to See the Difference: Video Capture for Patient-Centered Clinical Trials

Journal

Demonstrating the feasibility of digital health to support pediatric patients in South Africa

Poster

Patient Reported Outcomes Research in Trauma: testing the usability of an ePRO system with the PRiORiTy study