All publications

White paper

Video-Based Assessments to Digitise COA: validating vTUG for Parkinson’s disease

Journal

Development and usability testing of an ePRO solution for patients with inflammatory diseases in an ATMP basket trial

White paper

Video-Based Assessments to Digitise COA: the story of SARAhome

Journal

SARAhome video assessment deployed in pan-European ataxia observational study

Journal

Accelerometer-derived sleep measures in idiopathic dystonia

White paper

Provisioned Devices vs BYOD in Clinical Trials

Journal

A global neuronopathic Gaucher disease registry (GaRDIAN): a patient-led initiative

Journal

Considerations for patient and public involvement and engagement in health research

Poster

Co-creation of new digital outcome measures in amyotrophic lateral sclerosis (ALS)

Journal

Digitally enabled decentralised research: opportunities to improve the efficiency of clinical trials and observational studies

White paper

Use of remote monitoring and integrated platform for the evaluation of sleep quality in adult-onset idiopathic cervical dystonia

Poster

Sleep in adult-onset idiopathic focal cervical dystonia (AOIFCD): an evaluation using self-reported and accelerometer derived measures

Journal

Patient-led development of digital endpoints and the use of computer vision analysis in assessment of motor function in rare diseases

Journal

Symptoms and risk factors for long COVID in non-hospitalized adults

Poster

Harnessing the power of patients with Gaucher Disease Type 2 and Type 3