All publications
Findacure “Building your patient group data to drive research” webinar
Published: 09/10/2020
NTSAD Virtual Family Conference 2020
Published: 08/10/2020
Aparito digital endpoints patient group accelerator programme
Published:
Natural History Study In Late Onset GM2
Published: 07/10/2020
PROVIDE: Video-based patient-reported outcomes for Sanfilippo Disease: A new and innovative approach to record and measure disease post gene therapy
Published: 02/10/2020
Global disease registry for Neuronopathic GD
Published: 01/10/2020
A feasibility study of mHealth and wearable technology in late onset GM2 gangliosidosis
Published: 30/09/2020
Measuring disease activity and patient experience remotely using wearable technology and a mobile phone app: outcomes from a pilot study in Gaucher disease
Published:
Aparito’s timely response to COVID-19 for at risk oncology patients
Published:
Aparito’s global impact on Neuronopathic Gaucher Disease
Published:
Home-based technology for rare disease patients- Aparito’s approach for Late-Onset GM2 gangliosidosis
Published: 16/09/2020
Can wearable sensor technology support a paradigm shift in paediatric rare disease research?
Published: 30/08/2020