All publications
Aparito’s six year journey in lysosomal storage disorders
Published: 17/02/2021
Health Innovation Network “Remote Monitoring: Keeping patients safe in the community” webinar
Published: 28/01/2021
Healx “Digital Endpoints: Implementing Innovative Technologies to Improve Clinical Trials for Rare Diseases” webinar
Published: 27/11/2020
A Patient-Centric Approach to Designing a Mixed-Methods Observational Study Involving Adolescents with X-Linked Hypophosphatemia
Published: 20/11/2020
“Remote Patient Monitoring and Children in the COVID 19 Pandemic: What’s the Opportunity and What’s the Impact” Webinar
Published: 13/11/2020
IGA “Digital Health Technology” webinar
Published: 11/11/2020
Findacure “Building your patient group data to drive research” webinar
Published: 09/10/2020
NTSAD Virtual Family Conference 2020
Published: 08/10/2020
Aparito digital endpoints patient group accelerator programme
Published:
Natural History Study In Late Onset GM2
Published: 07/10/2020
PROVIDE: Video-based patient-reported outcomes for Sanfilippo Disease: A new and innovative approach to record and measure disease post gene therapy
Published: 02/10/2020
Global disease registry for Neuronopathic GD
Published: 01/10/2020
A feasibility study of mHealth and wearable technology in late onset GM2 gangliosidosis
Published: 30/09/2020
Measuring disease activity and patient experience remotely using wearable technology and a mobile phone app: outcomes from a pilot study in Gaucher disease
Published:
Aparito’s timely response to COVID-19 for at risk oncology patients
Published: