Abstract
Purpose: Successful implementation of innovative Precision Medicine initiatives in the management of children with complex epilepsy is largely dependent on the caregivers’ engagement with the technology as well as its accessibility and acceptability. We investigated the feasibility of implementing these initiatives in the South African setting by gathering information on the caregivers’ experiences, perspectives, and expectations for Precision Management of Epilepsy (PME) initiatives.
Methods: We purposively recruited 12 participants from a cohort of 40 caregivers of children with complex epilepsy recruited for a PME study attending Red Cross War Memorial Children’s Hospital (RCWMCH) in Cape Town, South Africa. Face-to-face semi-structured interviews were conducted using a pragmatic qualitative approach and themes were extracted using a thematic framework approach.
Authors: Irene Farisai Muchada 1, Jo M Wilmshurst 2, Nakita Laing 3, Elin Haf Davies 4, Karen Fieggen 5