All poster news

Poster

Harnessing the power of patients with Gaucher Disease Type 2 and Type 3

Poster

TASTY: Feasibility of facial expression analysis as an objective palatability assessment of paediatric medicine

Poster

Patient Reported Outcomes Research in Trauma: testing the usability of an ePRO system with the PRiORiTy study

Poster

The New Normal: Smartphone Technology and its Impact on the Logistics of Healthcare

Poster

Assessing Paediatric Feeding in Lysosomal Diseases using Remote Smartphone Video Technology: Feeding & Eating Evaluation Video Analysis (FEEDs)

Poster

Decentralised convenience: Digitised clinical assessment for impaired ambulation

Poster

Aparito’s six year journey in lysosomal storage disorders

Poster

A Patient-Centric Approach to Designing a Mixed-Methods Observational Study Involving Adolescents with X-Linked Hypophosphatemia

Poster

PROVIDE: Video-based patient-reported outcomes for Sanfilippo Disease: A new and innovative approach to record and measure disease post gene therapy

Poster

Global disease registry for Neuronopathic GD

Poster

Can wearable sensor technology support a paradigm shift in paediatric rare disease research?