With The University of Birmingham and the National Institute for Health Research (NIHR).
Each year, 1.4 million people attend A&E in England with a Traumatic Brain Injury (TBI) & over 50 million people worldwide have sustained a TBI. Advances in critical care, imaging and the reorganisation of trauma health systems mean that more people live with the damage caused by the TBI for longer.
This study aimed to develop and assess the feasibility of an Electronic Patient-Reported Outcomes (ePRO) system for inclusion within routine clinical care & TBI research; in this instance, getting people with a TBI to report their symptoms electronically utilising questionnaires via the Aparito Atom5™ platform.
First was a qualitative study to obtain the views of PROs and ePROs from people with a TBI, carers and health care providers, followed by a usability study.
Applying the results from the qualitative study and feedback from the PPI group, Aparito deployed Atom5™ to collect ePROM responses via a patient-facing app and a web-based clinician dashboard.
Patient attitudes towards ePROs were overwhelmingly positive:
- Less burdensome for patients & clinicians
- Fewer data entry errors
- Easy real-time data/remote monitoring & response
- Ability to send/receive feedback easily
Aparito’s Atom5™ platform enabled the team at the University of Birmingham to demonstrate the potential to capture PROs electronically in routine clinical practice and TBI research.