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Presentations

Healx “Digital Endpoints: Implementing Innovative Technologies to Improve Clinical Trials for Rare Diseases” webinar

Poster

A Patient-Centric Approach to Designing a Mixed-Methods Observational Study Involving Adolescents with X-Linked Hypophosphatemia

News

Tell Tales from the Co-Skipper…

Presentations

“Remote Patient Monitoring and Children in the COVID 19 Pandemic: What’s the Opportunity and What’s the Impact” Webinar

Presentations

IGA “Digital Health Technology” webinar

News

Aparito Digital Endpoints Patient Group Accelerator Programme – first two organisations selected

News

Remote Monitoring in all Four Corners of the World

News

Developing digital endpoints for the Gaucher community

News

Aparito’s remote patient monitoring technology wins two Healthcare & Pharmaceutical awards

Presentations

Findacure “Building your patient group data to drive research” webinar

Presentations

NTSAD Virtual Family Conference 2020

Presentations

Aparito digital endpoints patient group accelerator programme

Case Studies

Natural History Study In Late Onset GM2

Poster

PROVIDE: Video-based patient-reported outcomes for Sanfilippo Disease: A new and innovative approach to record and measure disease post gene therapy

Poster

Global disease registry for Neuronopathic GD