Another selection of our finest, this time it’s our favourite posters from 2022!
Harnessing the power of patients: Developing and validating the Neuronopathic Gaucher Disease Patient Reported Outcomes (nGD-PRO) and Observer Reported Outcomes (nGD-ObsRO) to measure HRQoL in patients with Gaucher Disease Type 2 and Type 3 documents over three and a half years of research to develop and assess the content validity of nGD-specific patient-reported outcomes (PRO) and observer-reported outcomes (ObsRO) measure in partnership with patients, caregivers, and other
stakeholders as part of the GARDIAN project with the International Gaucher Alliance and Cerner Enviza.
Dr Clare Matthews and Dr Rabia Aziza’s poster presentation at the Child Health Technology Conference 2022 showcased a fascinating project that Aparito have worked on with University College London to explore “Feasibility of facial expression analysis as an objective palatability assessment of paediatric medicine”.
This project utilised Aparito’s innovative video capture & analysis technology via the Atom5™ clinical trial platform to enable study participants to upload videos capturing their responses to taste. The videos were analysed by our data science team and their findings were disseminated via the poster.
The University of Cardiff investigated sleep in adult-onset idiopathic focal cervical dystonia (AOIFCD). Sleep disturbances are an important component of the phenotypic profile of adult-onset idiopathic focal cervical dystonia (AOIFCD), reported in up to 70% of patients. Given the chronic nature of dystonia, greater understanding of potential sleep disturbances would require minimally intrusive monitoring and minimal input from the patients themselves.
Created in conjunction with the University of Birmingham‘s CPROR team, this poster details how the team set out to develop and assess the feasibility of an electronic patient-reported outcome measure (ePROM) system for inclusion within routine clinical care & traumatic brain injury (TBI) research.